Showing posts with label reflux. Show all posts
Showing posts with label reflux. Show all posts

Wednesday, April 22, 2015

just breathe (wordless wednesday)


ETA: (ok, so that wasn't very "wordless". oops.)

Tuesday, February 24, 2015

Year of Specialists

I am fast beginning to realize that this is the year of appointments.

This week we have a Breathing Test for Abi. That should be interesting. I'm curious as to what will show up and what the specialist will suggest or say about her lung function.

We have her ENT appt booked for May. Yay! She has struggled a lot this winter with her tonsils and asthma and so I am happy to have this addressed. Especially when every doctor we saw (her own, plus two at the medical clinic) mentioned how Huge her tonsils were, so much so that our own doctor said that they were "almost kissing"! That can't be right!

We are finally seeing a new pediatrician for Rhys! I am so excited about that! We have actually seen this doctor before, when Bryn was a baby and struggling with reflux. This doctor also, incidentally, was the one on call when I brought Rhys into the ER at one month old and very very sick, and he's the one who did all sorts of tests on him (including spinal tap) to determine why he was having apnea spells. That was a scary visit! But this upcoming visit next month will be better! I'm looking forward to seeing a new doctor and hopefully getting something sorted out for Rhys. I hate having this Mommy Gut tell me something isn't "right" with my boy, but also having him "well enough" that I need to explain and justify myself.

For Kai, we got confirmation for his annual cardiology appointments in August, which is nice. I hate having to call BCCH to get our appointments booked. It is such a hassel and the receptionist never calls you back!  The doctor also has his 24-Hr Holter Monitor booked, as well as an exercise test, which shall be interesting.

Of course, we also have our usual dental visits (I'm not looking forward to an upcoming one) and an annual eye appointment next month as well. But those are normal.  Hopefully our "un normal" ones will give us good answers though. And for that I have hope and slight anticipation!

Wednesday, October 15, 2014

Remembering

October 15th is Pregnancy and Infant Loss Remembrance Day. I lit three candles for my babies and for my friends.






14 years...9 years....4 years... strange to think that much time has gone by.  (I shared my stories of them last year Here)


I remember them, but I hold those in my heart my very dear friends. The ones who I met during my Ectopic healing and who have become very close to me. The ones who I met during my Reflux years and have shared their hearts and losses. The ones who I know in church, in school, through friends...who all have their own stories and pain.

We don't talk much about infant and pregnancy loss still, but I am thankful for days like these, where we can all gather in support and memory. *hugs* to those who are still hurting and carrying those painful scars physically and in their heart. We remember you today.

Thursday, May 24, 2007

he's graduated!

Bryn saw the pediatrician yesterday and we were told that he's graduated and doesn't need to see him again! Yay! :) He was also weighed at 9kg, which is a bit less than what the scale said at the Public Health Unit, but that's okay. I think translated it is 19lbs 8oz. He's still a pound heavier than Kai at 9ms, and two over Abi! I'm happy still.

guess what? He's also jumped up Big time on the growth scale! He used to be below average (but still on the rate) but now he has jumped and is Average for height and weight. (I don't remember what his height was yesterday) I'm so pleased. It looks like he's definitely catching up to his peers, and that makes me happy. I have no worries for him.

Well, except for one… I mentioned his choking and gagging on pieces of food, and the ped mentioned how ther are two different kinds of gagging in an infant. They'll gag b/c they don't like the food and they'll gag b/c it just bothers him. He wanted to know if he has gagged on any foods that he typically likes, but the truth is, I haven't tried him on many foods at all! I'm nervous!!! So he wants me to cut up one of his faveourite foods (peaches) and see how he does. I'm scared he'll gag and choke again! Now, the pieces chopped up won't be too big to fit down his throat, but it's the whole idea of him gagging on foods that make me panic that he'll choke and will have trouble breathing and such! It's the protector in me!

But I tried small pieces of pancakes last night! Yum! He had them in his mouth and he was trying to figure it out if he liked them or not, lol. Eventually they came out onto his shirt with his silly tongue! It made me laugh! I didn't try again. I'll have to see what I can do tonight.

If we find out that he's gagging on foods he likes, then we will have to do a Barium Swollow on him to see if his reflux has caused damage to his throat and such. :( Poor baby. I'm worried it will come to that.

I guess the pediatrian is confident it's not that or he wouldn't have told us we didn't need to see him again! :) Oh, he also told me to tell the family to stop feeding Bryn! LOL He said how families will sometimes feed a baby constantly when they are on the underweight side to bring them up. Yeah, I can see that, but my family hasn't been too bad! Anyways, he wanted me to tell the family that we don't need to do that anymore! Okay? Got that everyone? Hahaha!

Pray that I can get him to eat chunkier foods soon. I'm worried it may be an oral sensory thing. He tends to gag easy. Maybe he has a sensitive gag reflex like his Daddy? But if it's a sensory thing, I just dread the idea of having him go through therapy to get him to eat and such. :( So sad. But I'm going to try not to jump ahead of myself here! Focus on small things, like finding foods to try!

Other than that, everything is normal and good and I'm happy! He is such a delight!

Tuesday, May 22, 2007

he's so clever

Bryn had a visit from Michele from the Infant Development Program this morning. (she used to come and see Kai all last year, until he turned 3 and his case was closed. I think she came to see him for his FTT. It was all so silly. Well, now she's seeing Bryn b/c he was a preemie) I had to keep Kai home because of it though b/c she was going to come just before his class ended, so there wouldn't be much use sending him to preschool for an hour. (ok, maybe there would be, lol) But then she called and asked if she could come earlier, at 9:30am, so I could've sent Kai anyways, grr. Oh well.

Michele did an "ages and stages questionairre" on Bryn for 8 months old, which is sort of his corrected age. And I am proud to say he passed it with flying colours! He is way ahead of the "at-risk" cut off, so I am pleased. He's doing so well. He can roll over and sit up on his own, is using lots of sounds and consonants, can pick up small items. He seems to favor his left hand right now, which is interesting. I don't know if it will mean anything in the end, but my Dad and my nephew are lefties, so it's in the family. (I don't know why people get so concerned about children using their right hand. Or maybe I'm misinterpreting her interest. But it's always bothered me. Likely b/c of the horror stories Dad would imply when he had to switch to right handed in kindergarten.)

My little guy is doing so well. She will come back when he is a year old (which is coming up so soon, it's so bizarre!) and will do another A&S Questionnaire for a year old. (no age correction) I'm looking forwards to that! I know he'll do so well.

He's still puking daily, but it's only small spit up amounts. Sometimes it'll be a huge amount, but that's not too often. He sees the pediatrician tomorrow just for a follow up and I'm going to mention that and the fact that he gags and chokes on small food pieces. I can't give Bryn Cheerios or baby cookies yet. I've tried to, but he typically ends up gagging or coughing and choking as soon as it hits the back of his throat. I've seen on MWP that this is pretty typical with reflux babies, so I'm not too worried. I'll just take it slower. But I'll mention it anyways. I'm hoping it's not a oral sensory thing, but it could be hyperactive oral stimulation, Michele said. We'll see what Dr. Ward says tomorrow.

Sunday, May 6, 2007

month of doctors!

Phew, this is going to be a busy month! I have my own doctor's apt on Tuesday (hopefully I can find an answer for why I'm BEYOND tired), then Kai has another ST apt on Wednesday. I see my rheumatologist next week. (I'd better get that xray done, gleeps) and then Bryn has to seriously catch up on his immunizations (and hopefully I can weigh him, yay). The week after that is Bryn's follow up with the ped. He's still throwing up and choking daily, but he's doing well. I'm getting so used to it. We all are. We just wipe him up and that's that!

I'll keep everyone updated as things happen!

Monday, March 5, 2007

a *bit* confused

I didn't get around to updating the wonderful news from last week! When we went in for our appointment with the pediatrician, we found out that being supplimented has indeed helped!!! My Little Big Guy gained OVER A POUND in ONE week!!!! teehee*chortle* He now weighs 6.6kg, which equals out to 14lbs 8oz!!! I am sooo proud of him! It is obvious that I am not producing enough! I am so pleased! (well, not on the not producing enough, but on his weight gain and how he's doing! LOL)

Of course, he was still vomiting and I wanted to address that. And guess what? The pediatrician himself mentioned about looking into the Reflux! WOW! I really thought he was going to side-step that one yet again! So I was impressed. He was gaining my trust again! He said that in regards to Reflux, they follow a pattern. First is trying Zantac. If that doesn't work, they add Motilium to it….. Oddly, he never did tell me the third step if step 2 doesn't work, lol! He mentioned how we originally were looking to solve the black stool issue (the maalox), which we did. And then we looked into the constant miserableness (they always downplay it, don't they? grr), which was from hunger. Yay! Now we can look into the reflux. I couldn't help but think that if he had explained himself like that a few weeks back, I would've understood and been more at peace about everything! Sheesh! oh well, we made it through that big hurdle!

The steps we are taking right now is to stop the motilium and to keep him on the Zantac, to see if that helps the reflux. If it doesn't, and he's still "spitting up" (as the ped says) then I am to add the motilium again. But I am to have him weighed again in a few weeks to see how he's doing. I am to expect to see large weight gains, but he said to not listen to the Public Health nurses if they say that he's eating too much or gaining too fast, lol! But if the jump is big, I'm to call and let them know so he can adjust the zantac doseage.

I feel really good about this. It's been almost a week and all is going really well. Which is so wonderful and such a blessing. But also leaves me a *bit* confused. (when am I not? LOL) …. He has stopped throwing up, spitting up, vomiting. That is, it's not coming out at all. I'm not too sure if I've noticed it happening to him silently either! *blush* Am I just not observant anymore? He's too young to be "growing out" of it, isn't he? So what's going on? Are things just calming down with the Zantac? I'm not even giving him that all the time. Instead of 4x/day like he suggests, I can get by on only 2 and have him fine. Is that good? It sounded good in my head, but now that I've typed it out I'm wondering! LOL He's alays been a Happy Spitter, so he could still be refluxing but not showing any effects. I'm not too sure. Is there some kind of "test" I can do? I don't doubt that he had reflux all this time, but I'm wondering what's going on now, that's all. All I know is that he's doing much better than he was two weeks ago! A LOT better! And I am so pleased.

****edited to add: As odd as it sounds, to my relief, Bryn woke up refluxing and screaming in the evening! Funny how I'm happy that happened. I'm bizarre, hahaha! But it was nice to have that answer!

Monday, February 26, 2007

well, THAT was gross!

Bryn is still throwing up with this formula. It's getting a bit OLD, you know? LOL I've already changed him twice today, and now I'll be looking for a third outfit. (roll eyes) Man, we don't have enough clothes for the boy for this! The annoying part is that he Spits Up more than anything… that is, it is only the amount of a tablespoon at most… but man! it sure stinks! The poor boy smells like vomit! (and so do I, I found out this afternoon, ewww! I kept smelling puke and I was trying to find out where it was coming from. It turns out it somehow transferred to my shoulder, so that sweater was soon discarded, and I've had two changes of clothes today too!!!) And he'll do it when we're not watching. He'll just suddenly smell like puke when I pick him up again! (rolleyes) What's up with that???

I had just fed him a bottle maybe 15 minutes earlier and he's happily on my lap trying to type on the keyboard (starting him young, lol) when he burps and hiccups and out pours this amount of regurgitated formula! YUCK!! All over himself and me! I wasn't impressed, I tell you! grr! lol I put him into his car seat and clean him up and myself, then go back to the computer since he's sitting fine. He starts to scream and fuss, so I get up and let him finish the bottle up, when I happen to look over at my computer chair. There is a puke splotch in the middle of it!!!! EWWW! I've been unknowingly sitting in it all this time!!!! gross!!!!

*shaking my head* So this is what reflux mom's go through! I was happier when he was a Silent Refluxer!!! LOL Well, maybe tomorrow's Ped apt will give us some better ideas for this. He's gone to screaming a LOT less…but throwing up MORE. Go figure!

Friday, February 23, 2007

update on Bryn and the Pediatrician

I made it to Bryn's appointment sane! YAY! It was on Wednesday. I didn't post about it because I wanted to think about it all, and consider what was going on. It was a very interesting visit and I'll admit I wasn't expecting how it turned out. I did go in there feeling nervous but determined to be Firm in my DEMAND for a PPI! I wrote on the top of my list (I always make them for dr visits) "PPI OR DIE" like I was instructed to do so at MWP by Maggie (LOL) and knew I couldn't go back without one or a referral! LOL

It started out good; I mentioned how I just had the Week From H*LL, how Bryn was screaming and screaming, etc, etc, …. and so he says, "hmm… maybe we need to look into something stronger for him." and he pulls out his little book of meds, and my heart is going up in glee! This may not be as hard as I had imagined! But then… he got off track and the fear began to set in….

He weighed Bryn and he has hardly gained. He was 6kg two weeks ago, and he's only 6.1today, so he's only gained 3 oz. He wasn't too impressed.

I mentioned how I'd seen a breastfeeding consultant last week and she said that everything looked good. He didn't appear to have a hind/fore milk imbalance. She weighed Bryn before and after I breastfed, and he gained 1 1/2 oz within the hour. The Ped wasn't impressed with that either! I brought up that Bryn only wets 2 diapers a day, and even then they aren't soaked. Still unimpressed. But now the Ped is starting to get concerned. He was actually really upset that this breastfeeding consultant at Public Health would say that this was Ok and Normal.

The ped's thoughts are that Bryn is very dehydrated and not getting enough. His plan of action was to get me pumping food into this kid to increase his calories. Maybe I'm not producing enough milk and so I am to "top up" after a feed with formula. Then I'm also to give him solids. And he thinks that will solve the whole issue. Which makes sense, because for a while now I've wondered if I had been producing enough, right? So maybe this is it.

I was concerned about the screaming though still. He thinks that's due to him being so hungry. But I was still worried that what if it Wasn't due to that? I was determined to get a script and I was starting to feel that I wasn't leaving with one. Until he said those magical words…. "would you like me to write you up a perscription?"

He gave me one for Motilium, which is also known as Domperidon (yes, like the wine,.. but not! LOL) It tightens the LES muscle and causes the tummy to empty rapidly (NOT the intestines so he'll still get nutrients) to prevent reflux. If the tummy is empty, he can't reflux. Or that's the idea. I filled the perscription, but haven't picked it up yet, so I don't know if it will change much or not.

Oh, he also threw up on the doctor!!!!! LMBO! I told him, "well, he doesn't do that for ME!" The ped admits it was his fault…waking him up to poke & weigh him, then holding him like a football… Poor boy smelled like puke! … he also went in like that though. I purposely left him in an outfit he puked in earlier!!!! I wanted the dr the see that things were NOT normal! (he probably didn't notice though…doctors are immune to things like that, aren't they? LOL)

I see the ped again on Tuesday to see if he's gaining. If he isn't, then he wants to do some tests on him. He admits that he is perplexed and that Bryn looks and seems healthy, so he doesn't anticipate that he's got something wrong or a disease. He also thinks that Bryn should be 7kg (I'm not too sure how many pounds that would be, but maybe around 17-20) but he is off the growth chart. I reminded him that Bryn HAS tripled his birth weight (he's 13lbs) which is what is expected by 6ms… Hmm…

The good news is that since following up with a bottle of formula after breastfeeding, Bryn has changed! He's happy more and easier to deal with. There hasn't been any screaming either! Wow! He's still puking and smells like vomit a lot though, yuck! And the bottles make him gassy. But he's doing well. He's soaking diapers, yay, but isn't up to the 6 a day the ped wants, but I'm sure that'll come soon. He's also awake a lot more too, which is different. Before, he would bf, then fuss and scream for an hour, then fall asleep from anywhere between 15 minutes til 1 hour. Now he's awake in the morning and up for 3-5 hours, playing and squealing and "talking". I'm running out of ways to entertain him! LOL But it's nice b/c I was starting to think that he shouldn't be sleeping as much as he did before!

So after two days, I really do think that Bryn was dehydrated. I am so blessed and relieved it was caught early enough. I mean, Bryn doesn't look sick or poorly or anything, so it wasn't an obvious thing. But it occurred to me the night after the apt that people DIE from dehydration!!! That's a scary thought!

I also think he has reflux!!! But I'm also lucky that he is a Happy Spitter! Maybe the ranididine will work after all! Maybe the motilium will help. Won't that be nice? That way I don't have to ruin the doctor's "I've never had to give anything stronger than Zantac for children" track record!!!! LOL

Monday, February 19, 2007

trying to be supportive

I've got to give my husband credit, he IS trying. He's actually been VERY helpful this past weekend…you know, the weekend that went by in a blur? He took care of Abi & Kai, and got laundry done (oh, it's nice wearing new clean undies, teehee) and made dinner… So why is it that I felt like crying and got all angry with him on Sunday morning? He offered to take the kids out so that I could nap with Bryn (if he fell asleep that is). Now THAT is something he wouldn't have done two years ago. So he IS changing, growing up, and becoming such a support to me as a Mother. I find it amazing! So what was my problem?

Oh, right. He made a comment about how sometimes he wonders if it really IS reflux.

Just the night before we were talking in bed and I was lamenting how I am always second guessing myself and I should stop. It is obvious it is reflux. It SCREAMS reflux. Bryn HAS reflux! I think so, I have friends who think so, the doctor thinks so, the pediatrician thinks so. So why am I always questioning myself???? ARRGH!!!!

And then the next morning, Jonathan says that, and I didn't know what to say. Then he wants to know if I'm upset with him!!!! (rolleyes) In tears I tell him that I just want his support with this. I can't do this on my own. I can't deal with Bryn's screaming and getting him on a proper medication on my own. And his comment made me feel like I have to convice my own husband! And after my conversation the night before!!!!

It turns out that he didn't mean it the way he said it. He said he knows it's reflux, he believes me, but he doesn't know if it's always his reflux that is making him scream or something else. Does that make sense or was he making it up to get himself out of trouble? lol He took offense to my comment about Support though. He IS supportive and he is showing his support in helping out in other ways, such as taking the kids out and letting me sleep. And doing laundry and for making dinner. Thoughtful ways. Ways that DO say support. But here I am still feeling like cr*p b/c I want him to "support" me in words. I want him to do all that… plus tell me that I'm right, that what I'm doing is good, that he trusts me and that he's amazed at how well I am handling this, that he knows I WILL be strong come Wednesday. I just want him to say that. Is that unreasonable? I felt pretty cr*ppy for insinuating that he wasn't being supportive. :( I just wanted some encouragement from my husband, that's all. He says we have different definitions of Support. I said that it was good we were going for a marriage conference soon!

I really Do love my hunny and am loving how much more helpful he's become, don't get me wrong. But like he said, we obviously had different views on how to support. *sigh*

I'm so nervous about this Wednesday. I can't handle Bryn's constant screaming. I am so worried about the damage the acid is doing. I can't do with the screaming and lack of sleep anymore. I NEED to get him onto proper medication. I know that. I feel it more and more strongly the more screaming hours he has. But… what if he doesn't scream in the office of the pediatrician? What if he doesn't understand just how tough it is? What if I crumble? I am sooo scared that I'll fail and I'll have to go home empty handed and in tears and have to explain to everyone how I didn't get anything for him. I'll feel sooo terrible and ashamed. Oh, I pray that God gives me the strength and the peace and the boldness I need. For Bryn. and for my sanity.

Oh, I have a funny story to mention…. this afternoon when I picked up Lynn (MIL) from work (she lets me borrow her beautiful JEEP Laredo on days I need to drive Abi to school or have drs apts, we are so blessed! let's not get into the guilt I let myself feel over this… rolleys) As usual, Bryn is screaming away in his car seat, the poor sad little boy. Lynn looks all concerned and she starts talking about how Bryn is obviously in pain, and how you can tell and how the doctors need to do something for him and how her heart breaks and how I need to be strong and be his advocate! I was a *bit* taken aback. This is the woman who just last week was wondering what the h*ll was wrong with my boy, suggesting how he's hungry or teething or just "not feeling well"…despite me telling her over and over again that he has reflux!!!! I was surprised that she suddenly had a change of heart…..

…until I mentioned it to Jonathan. He smiled and told me that when he went out with the kids and his Mom yesterday, he was telling her how we haven't slept b/c of Bryn's screaming and how it's from his reflux that is causing it. OH! Suddenly she "understands"!!! She just needed someone from HER family to explain it in English!!! (rolleyes) LOL! Oh well. At least she sort of knows! LOL

It made me laugh. It's good to laugh. :)

Friday, February 16, 2007

what a week!

TGIF! Right? That's what they say? I tell you, I am sooo happy that this week is "over"…okay, technically there's still Saturday, but you know what I mean. This week has been increasingly tough for me. To be honest, I don't know how I survived!!!

Since Bryn has lost his voice and this is day 4 and he's more than miserable and is choking and I was told that it could be caused by his reflux or related to it, I decided to take him to see a doctor. I didn't go with the clinic up the street (I think I'm done with that one and the crazy misdiagnosing doctors!!!) but wanted him to see our regular GP. Except Dr. Cathie wasn't available this morning and wasn't in that afternoon. However, we were told that there is the clinic to go to that evening. I opted for that.


I took Bryn to the clinic at our GP's office as soon as Jonathan came home and could watch the older two. I had just fed Bryn and he was playing fine in his exersaucer but he was quite upset about us going. In fact, on the whole 20ms drive there, he SCREAMED. In his pitiful voice. I was near tears. He fussed in my lap at the clinic, but guess what? Was just fine when the doctor saw us!!! No tears, no screams, didn't even prove he has no voice!!!


I ended up being seen by Dr. Fell, a dr who treated me 2 years ago, and was surprised she recognized me! (by face, not name–she is the dr listed on Abi's birth certificate for being the delivery dr, but the truth is, she didn't make it in time! LOL) She actually seemed to know a *bit* about reflux too and was really sympathetic, which helped. But I was sticking to my guns and mentioned how he screams, arches, throws up, etc. I told her how he was on Zantac, but it wasn't doing anything. She was stumped! She said it's Not Common for infants to go onto Zantac unless it's a really bad case!!! I TOLD her I wanted him put on a PPI. (yay go me!) But she said, "Ooooh, I don't know…. ahhh… that's not something we do for babies."

***stunned silence***

She suggested that I increase his Zantac to three times a day: morning dose, dinnertime and bedtime. I pointedly asked her, "how will that help his pain in the day?" She didn't know but said it may help with his fussiness in the night, again I asked what I was supposed to do for the daytime. She just didn't have an answer for me. She felt bad for me but said she didn't know much about meds or reflux enough to be able to give me something. I was so ready to cry right there! I don't blame her, but I was so upset!!! She said a few times that she wished she could offer me something or help me out, but said that I looked like I was "coping well." despite having a very troubled baby. I was thinking, "wow, lady, you have NO idea…!"


As for his lack of voice and CONSTANT choking and coughing up cr*p….I told her I was worried he had aspirated, so she listened to his chest (even though we could audiably hear crackling in his chest.) He's not wheezy, which is good, but he's got congestion. She said it sounded in the upper chest, but she was concerned that it may be lower and deeper. She couldn't be too sure, so she gave us a preventative script for amoxicilan. So that's something.


I'm not angry at the doctor; I like her a lot, she really DID feel badly for us. BUT she couldn't (or wouldn't) give us anything. But, to be honest, if i were in her situation I would've done the same. I mean, I'm seeing my own ped on Wednesday… *sigh* SOOOO…come Wednesday, I'm going to have to grow a backbone (LOL) and tell him that if he's not willing to give us a better medication then I need a referral to see a GI.


So that's that. I went to the truck and cried a bit. Bryn screamed almost the whole ride home again. When he fell asleep, I actually felt back for him all paranoid he'd stopped breathing!!! And since we got home, he's been screaming all evening. He's finally going to sleep again in my arms. (heaven forbid I put him down. ) Things pretty much sucked, but to be honest, I'm doing a LOT better than I was when I left the drs!!! I guess I keep plugging along until Wed.


The dr did say that if he gets worse, has trouble breathing, ect, to go to the ER. I wonder if THEY'D give him something??? lol

This has been on H*LL of a week. I am PMS'y, am so frustrated and at the end of my rope with Bryn's screaming, suffering from lack of sleep, am emotional… just not good. I'm not too sure what to do. Jonathan made me cry the other night too when he suggested I start taking my anti-depressants. I filled the script for them months ago at his request but didn't take them because I was doing so well. I didn't feel that I needed them. Sure I had a few tough days, but generally I feel OKAY. But now I'm not too sure. Am I *just* emotional and PMS'y, or am I suffering from depression again??? *sigh* I don't know if I should wait it out a bit longer, wait for my AF to end first, or start on the meds.

Bryn is screaming again. I thought he'd sleep better in his car seat instead of my arms. Silly me! LOL.

Monday, February 12, 2007

having a night

There is this song that I'm listening to right now, Rain Awhile, by Stabilo (click to go their website, stabilomusic, go to albums, click on the song title, listen!) and the bridge gets me each time.

"So believe in yourself
Don't wait for ground to break
Don't wait for ground
It's ok to feel alone
It's ok to feel not strong
once in a while
cuz I keep telling myself
what to feel
I play make believe until it's real
most of the time
because time was never too friendly to me
somehow change just avoided to great me
completely
and so when reality's taken its toll, just
pretend that you're
not in control
complacency.
it's ok to feel alone
it's ok to feel not strong
once in a while."

Not too sure why. Probably b/c it says it's OK to not feel strong. And that's how I feel tonight. Not strong. Like I don't know what to do. Angry. Frustrated. Grumpy. Sympathetic. Tired. Emotional.

I"m angry at Bryn's pediatrician who says he doesn't want to put him on any more medication right now. I'm p**sed off at dh for falling asleep on the couch watching tv while I've been dealing with a pained baby. I'm frustrated at Bryn for constantly crying when I put him down, and waking up within seconds. I'm emotional b/c I"ve given all I can to Bryn and nothing changes. I can't even drug up this child! *sigh*

He was asleep nice and soundly in my arms (finally) so I put him into his car seat so I could accomplish something this evening. Within a few moments, he's screaming, and I feel like smacking my head on the wall! He just looks at me with these large eyes, there's no mistaking his pain. I try teething tablets and tylenol b/c I figure it must be teething pain with his fists jammed in his mouth. I try gripe water and oval drops b/c he's passing a lot of gas. I even go as far as giving him Maalox b/c he's screeching and arching. Nothing. No response. Just screaming. So I give him a bottle of water with some brown sugar. That's supposed to help with constipation, which I know he has.

I feel like I'm venting about the same things each time, but each time it happens I honestly don't know what to do. Yet, there are many days he's fine. I mean, this hasn't happened since last time I posted! *wink* Bryn does have many good days, really! But he has many tough days, and it's those days that the doctors don't seem concerned with.

I"m feeding him solids more like the pediatrician suggests, but I don't see a change in him at all. But at least he's not worse! I was worried about that! He enjoys peaches and I'm still on the rice cereal. Not too sure which food to introduce next week…. you're supposed to wait a week before trying new foods, right? To see if they have a reaction, right? I don't remember ever doing that with the other two. *blush* teehee. I'm being more cautious with Bryn, likely b/c of him being a preemie and a refluxer.

Well, after typing one handed up until the paragraph above, I put a sleeping Bryn down. And he's awake and crying again. (rolleyes) What's going on? He usually has no problems, grr! Well, I can't complain too much. At least he's sleeping in my arms. I just wish I knew how to KEEP him asleep and out of pain. It's tough.

****note to self: make f/u apt with ped tomorrow. **** CR*P! I forgot to do that!!!!! (the receptionist was on her lunch break when our apt was done, so I didn't get a chance to book something then) I hope I can get in soon. At our apt last week (the 6th), the ped said that Bryn hadn't gained any weight, but I was realizing that he's not correct. According to what I have written down for his apt at the GP in Jan (5.87kg) and to the number he gave me that day (6kg) shows an increase. We never did have him weighed at his office on the 16th. So when he says he "hasn't gained any weight" I'm not too sure how much he expects in 3 weeks for a 5 1/2 month old. I must admit though that I'm worried that we'll get that nasty FTT tag on Bryn like we had/have on Kai. (do you ever get rid of the term?)

My poor boy. What a night! I'd better rescue him! He just wants me to hold him, the little bug! (rolleyes) He's crying so much he's starting to cough up cr*p. That's New!!!! I don't like that! Gotta go!
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